Special Event at SIAMG 2026

IndoUS Bridging RARE Summit @ SIAMG 2026

Bridging Nations. Advancing Rare Disease Solutions.

calendar_today 13th Dec 2026
location_on Artezia Hotel Bengaluru
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A dedicated, high-impact day within SIAMG 2026, the IndoUS Bridging RARE Summit brings together global leaders across healthcare, research, policy, and innovation to address one of the most urgent and underserved challenges in medicine—rare diseases.

From delayed diagnosis to limited access and underrepresentation in research, the summit is designed to move beyond dialogue and drive actionable, cross-border solutions between India, the United States, and the global ecosystem.

Be part of a mission that transforms rare disease care

Why This Summit Matters

Rare diseases affect millions, yet remain largely underserved due to gaps in diagnosis, research inclusion, and access to care.

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Early Diagnosis

Developing and implementing early and accurate diagnosis solutions to reduce the diagnostic odyssey for rare disease patients.

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Clinical Trials

Facilitating inclusion in global clinical trials and ensuring diverse populations are represented in life-saving research.

policy

Policy Barriers

Addressing systemic policy and affordability issues to make treatments accessible to those who need them most.

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Innovation

Scaling cost-effective innovation through technology and cross-border collaboration between India and the United States.

stars What You Will Experience

check_circle Focused, solution-driven sessions across diagnosis, trials, policy, and innovation
check_circle Global perspectives from world-renowned clinicians and researchers
check_circle Patient-centric insights grounded in real-world lived experiences
check_circle Pitch4Rare: Live showcase of breakthrough startups and technologies
check_circle High-value networking with government and cross-border stakeholders

Explore ideas. Build partnerships. Drive change.

diversity_3 Who Should Attend

Designed for decision-makers and changemakers across the rare disease ecosystem.

Clinicians
Researchers
Pharma Leaders
Startups
Policymakers
Patient Groups

If you’re shaping the future of healthcare, this is where you belong

Summit Spotlight

Pitch4Rare

At the heart of the summit lies Pitch4Rare—a platform where innovation meets opportunity. Selected startups present cutting-edge solutions in diagnostics, therapeutics, and patient support technologies.

Diagnostics • Therapeutics • Tech Support

Witness innovation in action

Be Part of the Movement

The IndoUS Bridging RARE Summit is more than a conference—it is a collaborative platform for impact, designed to bridge gaps across geographies, disciplines, and systems. Together, we can accelerate research, improve access, and create a more equitable future for rare disease communities worldwide.

👉 Join the movement. Drive the change.

Register for SIAMG 2026
Official Summit Agenda

Day 3 — Sunday, 13th December 2026

SIAMG – INDO-US BRIDGING RARE SUMMIT • Artezia Hotel, Bengaluru, India

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08:00 AM onwards

Registration, Morning Tea & Inauguration

All Delegates
WELCOME NOTE FOR SIAMG – INDO-US BRIDGING RARE SUMMIT
09:00 – 09:10 AM Welcome remarks for the day
Dr Harsha Rajasimha Dr Harsha RajasimhaUSA
SESSION 13 • 08:00 – 09:45 AM

SCIENTIFIC TALKS

09:10 – 09:30 AM Clinical RNA seq: Expanding utility of short read sequencing in diagnostics.
Dr V L Ramprasad Dr V L RamprasadIndia
09:30 – 09:50 AM Real world experience in management of Niemann Pick Disease
Dr Sunita Bijarnia Mahay Dr Sunita Bijarnia MahayIndia
09:50 – 10:00 AM Q&A session
Session Chairs TBD
Opening Plenary

The State of Rare Disease Research and Orphan Drug Development

10:00 – 10:40 AM

“New bold vision for rare diseases by 2050: Ensure most of the rare diseases are treatable.”

coffee
10:40 – 10:55 AM

Networking and Refreshments | Meet & Greet Patient Advocacy Groups

SESSION 14

FROM GENE TO THERAPY: THE NEW ERA OF PRECISION TREATMENT – PART I

Session Chairpersons: TBD
10:55 – 11:25 AM Landscape of SMA in India and Management Strategies – Panel Discussion
TBD
11:25 – 11:50 AM Vast therapeutic potential of antisense technology for rare genetic diseases
Dr Ravindra N Singh Dr Ravindra N SinghUSA
11:50 – 12:20 PM NF1: From Pathogenesis to Targeted Therapy – Panel Discussion
TBD
12:20 – 13:00 PM

Inspire the Next-Generation of orphan drug developers

How to launch a successful orphan drug development Program?

• Interactive activity with everyone's participation on main stage

restaurant
13:00 – 14:00 PM

Lunch Break – Networking Lunch | Meet & Greet Patient Advocacy Groups

SESSION 15

FROM GENE TO THERAPY: THE NEW ERA OF PRECISION TREATMENT – PART II

Session Chairpersons: TBD
14:00 – 14:30 PM Pediatric Neurodegenerative diseases: Navigating the journey from diagnostic odysseys to precision therapeutics.
Dr Deepa Rajan Dr Deepa RajanUSA
14:30 – 15:00 PM From diagnosis to therapies in brain white matter disorders
Dr Aurora Pujol Dr Aurora PujolSpain
SESSION 16

POLICY, ACCESS & AFFORDABILITY: THE SYSTEM CHALLENGE

Session Chairpersons: Dr Harsha Rajasimha & Dr Reena Kartha
15:00 – 15:30 PM

Regulatory frameworks, affordability, and policy gaps.

Speakers
  • • Special message from Dr.Frank Sasinowski (USA)
  • • Dr Philip Brooks (USA)
SESSION 17

ADVANCING RARE DISEASE RESEARCH: EQUITY, ACCESS, AND INCLUSION

15:30 – 16:00 PM

Advancing Rare Disease Research: Equity, Access, inclusion, and global clinical trials, and Strategy to improve India's inclusion in global trials

Panel Discussion
  • • Dr. Reena Kartha (USA)
  • • Dr David Rintell (USA)
  • • Dr Nishita Pillai (USA)
SESSION 18

PITCH4RARE – LIVE

16:00 – 17:00 PM

Startup pitches presenting innovative solutions in rare diseases

Master of Ceremonies (MC) Dr Priyankana Mukherjee Dr Priyankana MukherjeeIndia
Judges Panel
  • • Dr James A. Levine (USA)
  • • Dr Anish Bhatnagar (USA)
  • • Dr Satya Dash (India)
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Evening Networking

Networking at the Hotel Bar

Strengthened ecosystem relationships and follow-up opportunities

17:00 PM onwards